Individuals with Down syndrome have specific health care needs and are at risk for certain health conditions. There are local and national organizations that provide wonderful support and resources:
The Down Syndrome Program at Virginia Mason is the only Down syndrome clinic in Washington State, providing a range of services including primary care, health care maintenance, coordination of subspecialty needs, prenatal consultations and neonatal support. The clinic is led by Rebecca Partridge, MD.
The Down Syndrome Specialty Clinic located on the University of Washington Medical Center campus provides formal developmental assessments, consultation for behavioral concerns, and assessment for common medical problems that can contribute to behavior or development concerns. They also collaborate with schools and early intervention programs to help provide the best environment for success. At this time, they are only able to see children ages 1 through 10. The specialists available in their clinic include: developmental behavioral pediatrics, psychology, physical therapy, occupational therapy, speech therapy, social work, nutrition, genetic counseling, and audiology.
The National Down Syndrome Society (NDSS) has a very comprehensive section on Health Care for individuals with Down syndrome including associated conditions, and health care guidelines for children and adults with Down syndrome. They also have a section on Aging.
The American Academy of Pediatrics has compiled a set of Down Syndrome Health Care Guidelines that help define standards of quality of care of individuals with Down syndrome. These guidelines provide comprehensive information about health concerns for people with Down syndrome at each stage of development, from birth through adulthood.
Down Syndrome-Autism Connection™ provides education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism.
The National Down Syndrome Center also provides valuable healthcare information and resources.